A short, casual catch-up for Medics for Rare Disease Ambassadors (cohort 2024/25) starting their second year on the Programme. These informal sessions allow the Ambassadors to ask questions of the team and each other and to share experiences and challenges to inspire each other!
A short, casual catch-up for Medics for Rare Disease Ambassadors (cohort 2024/25) starting their second year on the Programme. These informal sessions allow the Ambassadors to ask questions of the team and each other and to share experiences and challenges to inspire each other!
Join one of two upcoming webinars on either the 27 or 28 October for a first look at Rare Disease Day 2026! Learn more about the resources which have been created and everything that is available for download to use in your campaign. This webinar is for patient advocates, patient organisations, industry supporters and all […]
Join the upcoming Rare Disease Grand Round, hosted by the King’s Health Partners Rare Disease Network—bringing together researchers and clinicians across the region to foster collaboration, share insights, and advance rare disease research. This session will focus on hepatobiliary disease, featuring expert talks on cutting-edge research: Mind over MASLD: Unravelling brain dysfunction in steatotic liver […]
2025 marks a special milestone — CamRARE’s 10th anniversary. A decade of progress. A future of possibilities. Over the past decade, we have championed collaboration, amplified patient voices, and driven progress in rare disease research, policy, and innovation. Through inspiring keynotes, dynamic discussions and workshops, and interactive networking opportunities, we will reflect on the past […]
A Hybrid event celebrating DOERS who showcase their Collaboration - Outreach - Co-creation projects with impactful Outcomes. This is your chance to be part of a dynamic, hybrid gathering.
Join Central and South Genomics this Men’s Health Awareness Month for a free webinar exploring how genomics and men’s health are connected. From fertility to oncology, our speakers will discuss how genetics influence wellbeing, risk, and treatment options. You’ll hear insights on: * X-linked conditions * Lynch Syndrome * Prostate cancer * Male infertility * […]
Thinking of running a Rare Disease event in 2026? Whether it’s a seminar, study day, or conference — this session is for you. Join Medics for Rare Diseases and our panel of Ambassadors who successfully organised Rare Disease events last year. Learn the ropes, get inspired, and discover how to make your event a success! […]
Join our Medics for Rare Disease alumni online meetup: Brew & Banter Edition! ☕💬 Reconnect with fellow alumni in this relaxed virtual catch-up. Hear updates from our current ambassadors, share your experiences, and explore ways to support and mentor the next generation of Medics for Rare Disease ambassadors. We’d love your input on the format […]
Learn how to deliver engaging Rare Disease 101 talks with tips, resources, and insights from experienced ambassadors. Thinking of running a Rare 101 training session in 2026? Whether you’re planning a full session or just have 10 minutes to introduce the basics, this online training is designed to help you succeed. Join our ambassadors—who have […]