3.5 million people in the UK live with a rare condition, the same number as those living with cancer. However the vast majority of healthcare professionals will never receive any dedicated rare disease training.
There are over 6,000 rare diseases, and while doctors can’t know them all, they can recognize shared challenges and patient experiences. By becoming Rare Aware, healthcare professionals can improve outcomes and even save lives. Medics for Rare Disease advocates for embedding this approach into medical training and practice, ensuring equitable, compassionate, and informed care for every patient.
LISTEN
Become Rare Aware when and how your schedule allows!
People living with rare disease often don’t feel listened to or believed by their doctors. This causes loss of hope, distrust in the healthcare system and, in some cases, avoidable tragedy. We believe that the journey to becoming Rare Aware starts by listening to the real life experiences of this incredibly resilient and hopeful community. Real life and unique personal storiesExpert guidance and reflections
LEARN
Rare Aware training that transforms your medical practice.
Turn your awareness into Rare Aware clinical practice through our Rare Disease 101 training. We provide free e-learning courses designed to build your knowledge and clinical confidence. From basics of managing rare disease patients in your practice to more specialised topics.
ADVOCATE
Lead change in your community.
Connect with peers, share knowledge, and champion Rare Aware clinical training and practice. Be part of the movement transforming the medical profession globally.
Stay Ahead: Recent Insights on Rare Aware medical practice
Weekly insights, case studies, and opportunities.
