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  • What we do
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    • Collectively CommonWhy do you need to become Rare Aware?
    • NewsInisghtful reflections and recent news from the medical and rare advocacy community.
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Upcoming Events

We host and promote events that educate, connect and empower healthcare professionals to be Rare Aware.

2 events found.

Events

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  • November 2025

  • Tue 11

    Event example 1

    November 11, 2025 @ 08:00 - 17:00

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  • June 2026

  • Tue 2

    European Conference on Rare Diseases & Orphan Products (ECRD 2026)

    June 2 - June 4
    O2 universum Congress Centre Českomoravská 2345/17, Libeň, Czech Republic

    🗓 Date: 2–4 June 2026 📍 Location: Prague & Online 🔗 Register: Sign up here Join EURORDIS‑Rare Diseases Europe for the largest patient‑led rare disease policy event in Europe! Over three days, patients, advocates, clinicians, researchers, and policymakers will come together to discuss therapy access, diagnosis, care, innovation, and more. We’re proud to support EURORDIS in sharing this opportunity and encouraging participation across our networks. ➡️ Register now: https://www.rare-diseases.eu/register/

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Medics for Rare Disease is the working name for Medics 4 Rare Diseases, a registered Charity in England and Wales (1183996)

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