This event will give you a comprehensive view of the direct to consumer genetic tests available and their implications. Through lectures from renowned specialists as well as lively debates, you will be well informed of the benefits and risks of ancestry and health tests.
Join author and artist Sarah Lippett to explore the power of sequential narrative.
A potpourri of genetic diagnosis, misdiagnosis and learning experiences
Shining the light on Aspergillosis
Medics 4 Rare Diseases and the RSM will bring a faculty of top speakers to explore how rare diseases are relevant in everyday clinical medicine
Findacure's Drug Repurposing for Rare Diseases Conference is returning for its seventh consecutive year!
Jointly organised with Action for Pulmonary Fibrosis, this meeting will give you an understanding of what it is like to live with Idiopathic Pulmonary Fibrosis (IPF) from people living with the disease. Pulmonary fibrosis (PF) is thought to affect around 70,000 people in the UK. One of the most aggressive and common forms of PF is Idiopathic Pulmonary […]
People living with a rare disease have the right to reach their highest potential of well-being; join us online for ECRD 2020 to take part in discussions to inform and build the future ecosystem for rare disease policies and services.
This unique webinar unites experts from primary care, advocacy and medical genetics within the rare disease sector to discuss the impact of the virus on the rare disease community. Participants will hear about the short and long-term impact of shielding, consider how to best protect vulnerable populations in the future, and reflect on the potential […]
This webinar will introduce Medics 4 Rare Diseases whose mission is to drive an attitude change towards rare diseases amongst medical students and doctors in training. In addition Lucy McKay, CEO of Medics 4 Rare Diseases and Gavin Jones, Director of Rare Disease, will be discussing core educational principles required to deliver better patient experience […]