This unique webinar unites experts from primary care, advocacy and medical genetics within the rare disease sector to discuss the impact of the virus on the rare disease community.

Participants will hear about the short and long-term impact of shielding, consider how to best protect vulnerable populations in the future, and reflect on the potential beneficial changes to services as a result of the pandemic – most acutely felt by people with complex diseases who depend on an intricate framework of support.

Speakers:

Ms Lindsay Weaver, CEO of Metabolic Support UK

Dr Will Evans, Clinical practice GP and academic GP, University of Nottingham & Chair of NP-UK

Dr Elizabeth Forsythe, Specialist Registrar in Clinical Genetics at Great Ormond Street Hospital