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  • Rare Fest 2024

    RAREfest24 A festival as unique as you are. For curious minds of all ages, for FREE. Fri 22 November – Launch Evening ‘Strictly Rare’ An evening of music, performance, comedy, […]

  • Haematology

    Alongside the British Society for Haematology this session will discuss management of sickle cell disease and the appropriate use of blood components. It will also explore diagnostic work up for […]

  • Rare Disease 101 for Rare Disease Day 2025!

    ONLINE

    Medics for Rare Disease: Rare Disease 101 for Rare Disease Day 2025! Join us this Rare Disease Day for an engaging and impactful Rare Disease 101 online training session, reimagined […]

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  • #ShowYourStripes for Rare Disease Day 2025

    ONLINE

    Calling all healthcare professionals… dig out your stripey socks and get ready to ‘show your stripes’ as we approach Rare Disease Day on 28th February. Medics for Rare Disease is […]

  • More Than You Can Imagine: Genomics and Rare Disease

    ONLINE

    Join Central and South Genomics for an insightful webinar in recognition of Rare Disease Day, where we bring together patients, healthcare professionals, and researchers to explore the latest in patient […]

  • Spotlight on the Unseen

    University of Liverpool

    Join us on Friday, 28th February, from 16:00–18:00 at Formby Room, Cedar House, University of Liverpool. This seminar is an exciting opportunity to learn from an expert speaker, hear powerful […]

  • Swansea Rare Disease Study Day

    Morriston Hospital Education Centre Heol Maes Eglwys Treforys SA6 6NL

    Dive deep into the world of rare diseases at the first Swansea Rare Disease Study Day on 8th March 2025! Why attend? Gain invaluable insights from our expert guest speakers. […]

    Various
  • Soft UK Healthcare Professionals Seminar

    Holiday Inn, Birmingham

    SOFT UK invites healthcare professionals to a transformative seminar focused on the power of language in supporting families navigating rare genetic diagnoses and ongoing care. This event offers a unique […]

  • Genomics in Primary Care: What GPs need to know

    ONLINE

    Genomic medicine has a significant impact within the field of primary care. Generally acting as the gateway to the NHS and specialised services, primary care practitioners are crucial in the […]