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  • Galactic Genomes: Exploring the Universe of Rare Diseases

    Cambridge University

    “May the fourth be with you!” Cambridge University Rare Disease Society and Cambridge University Genomic Medicine Society are co-hosting a stellar event in Cambridge on Saturday 4 May. The day […]

  • ECRD 2024

    The Square Venue, Brussels

    The 12th European Conference on Rare Diseases & Orphan Products (ECRD) is recognised globally as the largest, patient-led, rare disease policy-shaping event in which collaborative dialogue, learning and conversation takes […]

  • Rare Fest 2024

    RAREfest24 A festival as unique as you are. For curious minds of all ages, for FREE. Fri 22 November – Launch Evening ‘Strictly Rare’ An evening of music, performance, comedy, […]

  • Haematology

    Alongside the British Society for Haematology this session will discuss management of sickle cell disease and the appropriate use of blood components. It will also explore diagnostic work up for […]

  • Rare Disease 101 for Rare Disease Day 2025!

    ONLINE

    Medics for Rare Disease: Rare Disease 101 for Rare Disease Day 2025! Join us this Rare Disease Day for an engaging and impactful Rare Disease 101 online training session, reimagined […]

    various
  • #ShowYourStripes for Rare Disease Day 2025

    ONLINE

    Calling all healthcare professionals… dig out your stripey socks and get ready to ‘show your stripes’ as we approach Rare Disease Day on 28th February. Medics for Rare Disease is […]

  • More Than You Can Imagine: Genomics and Rare Disease

    ONLINE

    Join Central and South Genomics for an insightful webinar in recognition of Rare Disease Day, where we bring together patients, healthcare professionals, and researchers to explore the latest in patient […]

  • Spotlight on the Unseen

    University of Liverpool

    Join us on Friday, 28th February, from 16:00–18:00 at Formby Room, Cedar House, University of Liverpool. This seminar is an exciting opportunity to learn from an expert speaker, hear powerful […]