Following on from the first three Genomics Education Programme webinars in the LinkAGE series, the next talk followed by a live Q&A will be broadcast on Thursday 20 April at 5:30pm. In this pre-recorded webinar, Dr Hassan Shakeel will describe his work repurposing drugs for rare disease. This culminated in an algorithm that can screen […]
Some more info we share for advertising: Are you a medical student or doctor who is interested in exploring unconventional career paths in medicine? Then we have the perfect event for you! BL Women In Healthcare proudly presents our 3rd Annual Conference: Beyond the Ward. This year's conference will take place online on Saturday, 29th April 2023, from 9.00am to 4.30pm. You will have the […]
Hosted at the Renaissance Downtown Hotel, the rare disease community will come together in Washington DC for a day of learning, networking and fun! Hear real stories from the community and gain practical knowledge to help you live your best life while navigating your rare disease journey. The living rare forum is your opportunity to […]
29 Industry Leaders From Pharma, Advocacy Groups & Patients Themselves Share Their Latest Insights Into Driving Forward Patient Engagement Through Embedded Partnerships In Just One Day! Advanced, High-Impact, Value-Adding Strategies For Patient Centricity, Engagement & Partnerships Drive End-To-End Patient Engagement & Break Through Longstanding Barriers To Patient Centricity – Effectively Collaborate With Advocacy Groups & Stakeholders […]
Theme: Diversity- Dialogue and Development! In May, the United Nations 'World Day for Promoting Cultural Diversity for Dialogue and Development' will be taking place. This day will raise awareness about the essential role that intercultural dialogue has, in bringing positive change. This theme has underpinned the development of the EDIRA conference. The ultimate aim of […]
Our Rare Mind and Rare Body events for the International Pint of Science Festival are now live! Join us for engaging research talks and interactive activities in the pub with leading Cambridge experts on May 22 and 24. To view the full programme click here
The month's leading up to Christmas are a magical time for medical research. The impending holiday season creates a dynamic upsurge in productivity, with researchers finding time to finish off statistical analyses, draft manuscripts and respond to reviewers comments. This activity leads to a plethora of submissions to journals such as The BMJ in December, […]
We are thrilled to invite you to this special event to mark the one-year anniversary of the Manchester Rare Conditions Centre. This event will highlight the significant strides Manchester has made in improving the lives of individuals with rare conditions. The aim of this celebration is to showcase the progress the centre has made in […]
Medicine and Me meetings aim to provide an outline of current best practice and future updates for important conditions. They give a direct voice to patients and carers, enabling them to discuss their concerns and reflections on the impact of diagnosis, investigation and management. Physicians, surgeons and indeed all healthcare professionals continue to learn from and be inspired to […]
People affected by a rare and undiagnosed condition live with an accumulative impact on their mental wellbeing. Specifically at an individual level, people living with a rare disease (PLWRD) can have an associated mental health co-morbidity, and at a population level, the community live with the increased psychological impact associated with the rare disease journey […]