Hosted at the Renaissance Downtown Hotel, the rare disease community will come together in Washington DC for a day of learning, networking and fun! Hear real stories from the community and gain practical knowledge to help you live your best life while navigating your rare disease journey.

The living rare forum is your opportunity to connect with others in the rare disease community.

By attending, you will have access to:

• Sessions on valuable topics, such as: Finding and Living Your New Normal with a Rare Disease, Drug Development for Rare Diseases, Rare Breakthroughs: Now and On the Horizon, and more.
• An opportunity to connect with fellow community members at the Friday welcome reception and Saturday breakfast.
• Hot topic discussion lunch tables.
• Event swag! Register by April 1st to be guaranteed a t-shirt.

Can’t attend in person? You can also attend virtually!

To book or to learn more about this event, visit their site.