The Oxford Rare Disease Society (OxRare) and the Sherrington Society are excited to welcome you to “Connecting the Dots” – our first Oxford University Student Rare Disease Conference, taking place […]
Join Central and South Genomics for an insightful webinar in recognition of Rare Disease Day, where we bring together patients, healthcare professionals, and researchers to explore the latest in patient […]
Dive deep into the world of rare diseases at the first Swansea Rare Disease Study Day on 8th March 2025! Why attend? Gain invaluable insights from our expert guest speakers. […]
SOFT UK invites healthcare professionals to a transformative seminar focused on the power of language in supporting families navigating rare genetic diagnoses and ongoing care. This event offers a unique […]
Genomic medicine has a significant impact within the field of primary care. Generally acting as the gateway to the NHS and specialised services, primary care practitioners are crucial in the […]
Monday 23rd June 9.30 - 4pm at Edgbaston Park Hotel. LIMITED PLACES - reserve your spot now! Welcome to the IAG2 Face to Face Meeting! Medics for Rare Disease has […]
Genomic testing is a complex clinical topic, with new developments and discoveries taking place at a rapid rate. Often, we focus predominantly on the clinical and scientific aspects of genomics, […]
Have you ever heard of a Delphi Study and not quite sure what it entails? Or maybe you have never heard of Delphi? This webinar will be providing training on […]
2025 marks a special milestone — CamRARE’s 10th anniversary. A decade of progress. A future of possibilities. Over the past decade, we have championed collaboration, amplified patient voices, and driven […]
Co-hosted by Medics for Rare Disease and King’s Health Partners Rare Disease Network 📅 Date: Friday 6 March 2026 ⏰ Time: 12:00 – 16:45 📍 Location: Great Hall, King’s College […]