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  • Vasculitis: registries, pathways and therapeutics

    This free 2 day webinar will provide a comprehensive update on all UKIVAS group activities and plans for the future, along with recent clinical and research updates in vasculitis. This is a multidisciplinary webinar where adult and paediatric vasculitis management will be examined. The themes highlighted are relevant to; renal, rheumatology, respiratory, ENT, dermatology and […]

    FREE
  • Findings from the NCARDRS rare disease collection discovery phase

    ONLINE

    This webinar is about the National Congenital Anomaly and Rare Disease Registration Service (NCARDRS) which is part of NDRS As part of the National Disease Registration service (NDRS) webinar series, this webinar will cover: NCARDRS supporting specialised services The impact of COVID-19 amongst people with rare autoimmune rheumatic disease in England Understanding histiocytic disease – […]

  • Building NHS healthcare professional awareness resources

    ONLINE

    Come along to learn more about how your voice can help healthcare professionals learn about rare disease. You will be joined by Kate Tatton-Brown and Alison Pope, Clinical Directors at NHS England, as they present the Genomics Education Programme and why it’s important. Please find the link to the zoom webinar here: https://us06web.zoom.us/j/84487083787 We would […]

  • Genomics in Primary Care: What GPs need to know

    ONLINE

    Genomic medicine has a significant impact within the field of primary care. Generally acting as the gateway to the NHS and specialised services, primary care practitioners are crucial in the early identification of genetic conditions and in ensuring appropriate management of a range of conditions. Genomics features in everyday primary care practice in a range […]