Join us for this ONLINE event on Rare Disease Day 2023, find out about how rare genetic conditions, like SRS, are diagnosed and hear about what it’s like to live with Silver-Russell syndrome (SRS). Featuring Gracie Taylor, Patient Voice (& Science Insights Alumni) Prof Mary Porteous, SE Scotland Rare Disease Diagnostic Service Dr Emma Wakeling, Clinical Genetics and Genomics Consultant, Great […]
The Student Voice Prize is delighted to invite you to our second annual virtual rare disease day event 'Beyond the Student Voice Prize;' an opportunity to connect with peers and patient group leaders to learn more about the rare community and how you can get involved and continue your advocacy. What can you expect? The […]
Students for Global Health is excited to announce that our Annual Global Health Conference which will be held in Manchester over the weekend of March 25th-26th! Students for Global Health is an organisation, network and community. In our 20 year history, we have evolved into the leading student voice for health, representing students who are […]
We are close to our “3rd International Conference on Lysosomal Diseases” which takes place 20-21 April 2023, in London, UK. The conference is offering 35% DISCOUNT on registration fee to students and fellows. Here is the link for the programme https://med-lysosomal.com/congress-agenda/ The abstract submission is open via the link https://med-lysosomal.com/abstracts/ Please contact Rosemarie to receive the discount […]
Our Rare Mind and Rare Body events for the International Pint of Science Festival are now live! Join us for engaging research talks and interactive activities in the pub with leading Cambridge experts on May 22 and 24. To view the full programme click here
We are thrilled to invite you to this special event to mark the one-year anniversary of the Manchester Rare Conditions Centre. This event will highlight the significant strides Manchester has made in improving the lives of individuals with rare conditions. The aim of this celebration is to showcase the progress the centre has made in […]
Medicine and Me meetings aim to provide an outline of current best practice and future updates for important conditions. They give a direct voice to patients and carers, enabling them to discuss their concerns and reflections on the impact of diagnosis, investigation and management. Physicians, surgeons and indeed all healthcare professionals continue to learn from and be inspired to […]
Come along to learn more about how your voice can help healthcare professionals learn about rare disease. You will be joined by Kate Tatton-Brown and Alison Pope, Clinical Directors at NHS England, as they present the Genomics Education Programme and why it’s important. Please find the link to the zoom webinar here: https://us06web.zoom.us/j/84487083787 We would […]