It’s 2018 and rare diseases are still not being consistently diagnosed, treated and supported effectively. Free to attend, this 2-day festival will shine a light on some successes and innovative solutions that are striving to address this. RAREfest will raise awareness of rare conditions and bring together all stakeholders in the rare disease community alongside the general public […]
CRDN are hosting a Rare Disease session as part of the new Cambridge Biotech Week Health Horizons Forum.Health Horizons is a high calibre, two-day conference focusing on the future of the healthcare industry. Created by the Global Innovation Forum.
RAREsummit19 is a 1 day summit focusing on patient centricity in rare disease - mastery, opportunities and trends in the drug development process, healthcare and assistive technologies.
It may be impossible for all doctors to have knowledge of more than 7,000 recognised rare diseases. However, it is feasible for all future and current medical professionals to learn when to suspect a rare disease, to appreciate that rare diseases are collectively common and to recognise the exceptional challenges faced by those affected. At […]