Deprecated: File Theme without header.php is deprecated since version 3.0.0 with no alternative available. Please include a header.php template in your theme. in /home/m4rd-new/public_html/wp-includes/functions.php on line 6131 Past Events from 24th May 2019 – 28th November 2018 – Page 9 – Medics For Rare Disease (clone)
During times of global disruption, it is often those who are already disadvantaged that are disproportionately affected. Theme 2 of the ARDEnt report highlights this impact on those with rare conditions. Jointly organised with ARDEnt, this webinar will examine how the reduction to healthcare, social services and SEND (special educational needs and disabilities) education has had a devastating impact that […]
The Unusual Suspects: Rare disease in everyday medicine is returning to The Royal Society of Medicine on 9th February! The M4RD Annual Symposium has been a popular event in the rare disease calendar for many years, allowing healthcare professionals at all levels, trainees and students to come together to learn more about the importance of understanding rare […]
This episode refers to theme 3 in the Making The Unseen Seen: Rare disease and lessons learned from the pandemic report and will discuss how safety considerations, travel restrictions, shielding, trial-sites being repurposed to COVID-19 wards, research staff either being called to the front- line or called to replace others who were, have compounded the already […]
Jointly organised with ARDEnt, this webinar will discuss the recommendations the ARDEnt team is using to help inform how the UK is going to deliver its objectives set out in the UK Rare Diseases Framework, published in January 2021. The webinar panel includes members of ARDEnt and those responsible for overseeing the impact of the Framework […]
Learn how you can further your interest and get more involved in the world of rare diseases to benefit both yourself and the rare community The Student Voice Prize is delighted to invite you to our virtual rare disease day event 'Beyond the Student Voice Prize;' an opportunity to connect with peers and patient group […]
Business Design Centre
52 Upper Street, London, United Kingdom
The Summit is an exciting one-day event that explores the latest research and technology innovations from Genomics England, partners and complementary fields. Through talks, panel discussions, posters and exhibitions across four themes, you can take part in a valuable programme tailored to your areas of interest. Make connections, learn new skills and help to shape […]
Queen Mary University of London
Perrin Lecture Theatre, Blizard Building, Faculty of Medicine & Dentistry, 4 Newark Street, London, United Kingdom
Join QMUL for a special in conversation event with vaccine expert and alumnus Professor Sir Andrew Pollard (Medicine MBBS, 1989), who leads the team behind the Oxford-AstraZeneca vaccine for COVID-19. You will also hear from the Principal, Professor Colin Bailey CBE, Professor Sir Mark Caulfield, Vice-Principal (Health), and our chair, Dr Vanessa Apea, Consultant Physician […]
Espresso Library
210 East Road, Cambridge, Cambridgeshire, United Kingdom
Every person has two copies of each gene, one inherited from each parent. Most genes are the same in all people, but a small number of them are slightly different. These tiny differences contribute to each person’s unique physical features. Let’s explore rare imprinted genes, a special class where one parental copy is switched off, […]
Espresso Library
210 East Road, Cambridge, Cambridgeshire, United Kingdom
Researchers developing new treatments for children with rare brain tumours know that it’s not a case of treating children like tiny adults and that surviving the disease isn’t enough. Reducing the damage done by treatments is just as important to the survivor. Discover how researchers are minimising damage and why they think studying rare children’s […]
Getting wider access to drugs for as many patients a possible is a clear priority in the drug development process, especially for patient groups who are working to secure research into and treatments for their rare conditions. However, understanding how to secure access to newly developed treatments is an often-neglected challenge. The processes involved in […]
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