Join the upcoming Rare Disease Grand Round, hosted by the King’s Health Partners Rare Disease Network—bringing together researchers and clinicians across the region to foster collaboration, share insights, and advance rare disease research. This session will focus on hepatobiliary disease, featuring expert talks on cutting-edge research: Mind over MASLD: Unravelling brain dysfunction in steatotic liver […]
2025 marks a special milestone — CamRARE’s 10th anniversary. A decade of progress. A future of possibilities. Over the past decade, we have championed collaboration, amplified patient voices, and driven progress in rare disease research, policy, and innovation. Through inspiring keynotes, dynamic discussions and workshops, and interactive networking opportunities, we will reflect on the past […]
A Hybrid event celebrating DOERS who showcase their Collaboration - Outreach - Co-creation projects with impactful Outcomes. This is your chance to be part of a dynamic, hybrid gathering.
Join Central and South Genomics this Men’s Health Awareness Month for a free webinar exploring how genomics and men’s health are connected. From fertility to oncology, our speakers will discuss how genetics influence wellbeing, risk, and treatment options. You’ll hear insights on: * X-linked conditions * Lynch Syndrome * Prostate cancer * Male infertility * […]
Thinking of running a Rare Disease event in 2026? Whether it’s a seminar, study day, or conference — this session is for you. Join Medics for Rare Diseases and our panel of Ambassadors who successfully organised Rare Disease events last year. Learn the ropes, get inspired, and discover how to make your event a success! […]
Join our Medics for Rare Disease alumni online meetup: Brew & Banter Edition! ☕💬 Reconnect with fellow alumni in this relaxed virtual catch-up. Hear updates from our current ambassadors, share your experiences, and explore ways to support and mentor the next generation of Medics for Rare Disease ambassadors. We’d love your input on the format […]
Learn how to deliver engaging Rare Disease 101 talks with tips, resources, and insights from experienced ambassadors. Thinking of running a Rare 101 training session in 2026? Whether you’re planning a full session or just have 10 minutes to introduce the basics, this online training is designed to help you succeed. Join our ambassadors—who have […]
Join Rare Diseases International for this public webinar where they will discuss the current status of the WHA Resolution implementation, as they approach the World Health Organization Executive Board meeting taking place in February 2026. This webinar will engage in a multistakeholder dialogue focusing on the necessary path forward to accelerate the implementation of the […]
Kick off the New Year with a cuppa and a catch-up at our New Year Ambassador Brew ☕ This relaxed, virtual get-together is a chance for our Ambassador community to reconnect, welcome new faces, and ease into the year ahead together. There’s no formal agenda - just good conversation, shared experiences, and space to reflect […]
Learn how to deliver engaging Rare Disease 101 talks with tips, resources, and insights from experienced ambassadors. Thinking of running a Rare 101 training session in 2026? Whether you’re planning a full session or just have 10 minutes to introduce the basics, this online training is designed to help you succeed. Join our ambassadors—who have […]