A Puff of Smoke Talk and Workshop w/ author and artist Sarah Lippett
Join author and artist Sarah Lippett to explore the power of sequential narrative.
£5.98 – £7.50
7 events found.
workshop
Events
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The Centre for Better Health 1A Darnley Road, London, United Kingdom
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Understanding Rare Disease: Communicating with Patients
Sign up to learn about the role of communication in rare disease from those affected directly, in an interactive FREE virtual event! About this event The event will kick off with a session from our guest speaker, who will explore the value of effective and sensitive communication skills when it comes to handling complex conditions, […]
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Patient partnerships: Improving healthcare equality from pandemic to endemic
LIVE STREAMThe purpose of this event is to promote partnerships between patients and the medical profession to pave the way for a better, more inclusive healthcare system as we rebuild after the pandemic. By strengthening this relationship, we aim to ensure patients never feel isolated when they are at their most vulnerable. We will discuss real-life […]
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Your Rare Event Toolkit: Plan, Run, Inspire
ONLINEThinking of running a Rare Disease event in 2026? Whether it’s a seminar, study day, or conference — this session is for you. Join Medics for Rare Diseases and our panel of Ambassadors who successfully organised Rare Disease events last year. Learn the ropes, get inspired, and discover how to make your event a success! […]
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Rare 101: Train the Trainer – Plan Your Own Rare Disease Session
ONLINELearn how to deliver engaging Rare Disease 101 talks with tips, resources, and insights from experienced ambassadors. Thinking of running a Rare 101 training session in 2026? Whether you’re planning a full session or just have 10 minutes to introduce the basics, this online training is designed to help you succeed. Join our ambassadors—who have […]
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Demystifying the connection between patients and researchers
Kings College London Great Hall, King’s College London – Strand Campus, London, London, United KingdomCo-hosted by Medics for Rare Disease and King’s Health Partners Rare Disease Network 📅 Date: Friday 6 March 2026 ⏰ Time: 12:00 – 16:45 📍 Location: Great Hall, King’s College London – Strand Campus, WC2R 2LS (In-person event) About the event Medics for Rare Disease is pleased to be co-hosting a half-day, in-person event with […]
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Rare Disease, NF1 and Primary Care: Research Workshop
Engine Rooms Birchwood Park, Warrington, CheshireThis interactive research development workshop brings together clinicians, academics, researchers and industry partners to explore how primary care can better support people living with rare diseases. Using neurofibromatosis type 1 (NF1) as an exemplar condition, the session will examine early recognition, diagnostic pathways, care coordination, and opportunities for research using routinely collected data and digital health tools. Participants will collaborate to identify evidence gaps and develop a patient-centred research agenda grounded in everyday primary-care practice.