Medics for Rare Disease: Rare Disease 101 for Rare Disease Day 2025! Join us this Rare Disease Day for an engaging and impactful Rare Disease 101 online training session, reimagined with updated content and a fresh new look ✨. Rare disease affects 350 million people worldwide, yet remains underrepresented in medical education. This session is […]
Genomic medicine has a significant impact within the field of primary care. Generally acting as the gateway to the NHS and specialised services, primary care practitioners are crucial in the early identification of genetic conditions and in ensuring appropriate management of a range of conditions. Genomics features in everyday primary care practice in a range […]
Genomic testing is a complex clinical topic, with new developments and discoveries taking place at a rapid rate. Often, we focus predominantly on the clinical and scientific aspects of genomics, but it’s crucial to remember that each advancement has life-changing impacts on people across the world. In this webinar, we'll be exploring the lived experiences […]
Have you ever heard of a Delphi Study and not quite sure what it entails? Or maybe you have never heard of Delphi? This webinar will be providing training on what a Delphi Study is and how they are run. PhD Candidate, Shams Al-Ani, studying Pharmaceutical medicine and regulatory affairs at Centre for Pharmaceutical Medicine […]
A short, casual catch-up for Medics for Rare Disease Ambassadors (cohort 2024/25) starting their second year on the Programme. These informal sessions allow the Ambassadors to ask questions of the team and each other and to share experiences and challenges to inspire each other!
A short, casual catch-up for Medics for Rare Disease Ambassadors (cohort 2024/25) starting their second year on the Programme. These informal sessions allow the Ambassadors to ask questions of the team and each other and to share experiences and challenges to inspire each other!
Join one of two upcoming webinars on either the 27 or 28 October for a first look at Rare Disease Day 2026! Learn more about the resources which have been created and everything that is available for download to use in your campaign. This webinar is for patient advocates, patient organisations, industry supporters and all […]
Join the upcoming Rare Disease Grand Round, hosted by the King’s Health Partners Rare Disease Network—bringing together researchers and clinicians across the region to foster collaboration, share insights, and advance rare disease research. This session will focus on hepatobiliary disease, featuring expert talks on cutting-edge research: Mind over MASLD: Unravelling brain dysfunction in steatotic liver […]
Join Rare Diseases International for this public webinar where they will discuss the current status of the WHA Resolution implementation, as they approach the World Health Organization Executive Board meeting taking place in February 2026. This webinar will engage in a multistakeholder dialogue focusing on the necessary path forward to accelerate the implementation of the […]
Connect with healthcare professionals and students from around the world for a dynamic discussion on rare disease medical training across global contexts. As part of this interactive session, we’ll also deliver a FLASH Rare Disease 101 training showcasing our updated e-learning course - giving you the opportunity to #LearnYourStripes ahead of Rare Disease Day 2026. […]