Deprecated: File Theme without header.php is deprecated since version 3.0.0 with no alternative available. Please include a header.php template in your theme. in /home/m4rd-new/public_html/wp-includes/functions.php on line 6131 Past Events from 24th May 2019 – 28th November 2018 › Royal Society of Medicine › – Medics For Rare Disease (clone)
During times of global disruption, it is often those who are already disadvantaged that are disproportionately affected. Theme 2 of the ARDEnt report highlights this impact on those with rare conditions. Jointly organised with ARDEnt, this webinar will examine how the reduction to healthcare, social services and SEND (special educational needs and disabilities) education has had a devastating impact that […]
This episode refers to theme 3 in the Making The Unseen Seen: Rare disease and lessons learned from the pandemic report and will discuss how safety considerations, travel restrictions, shielding, trial-sites being repurposed to COVID-19 wards, research staff either being called to the front- line or called to replace others who were, have compounded the already […]
Jointly organised with ARDEnt, this webinar will discuss the recommendations the ARDEnt team is using to help inform how the UK is going to deliver its objectives set out in the UK Rare Diseases Framework, published in January 2021. The webinar panel includes members of ARDEnt and those responsible for overseeing the impact of the Framework […]
This webinar is part of the popular Genetics of webinar series and will provide an interesting update on the genetic origins of intellectual disability, as well as explore what challenges remain in this area. Our speakers will explore what research is required after a genetic diagnosis of intellectual disability and what families would value the most from the […]
Royal Society of Medicine
1 Wimpole Street, London, United Kingdom
Join the RSM at this multidisciplinary event which will provide a valuable overview and a broader understanding of hypermobility syndrome and the care of these patients. Experts in their field will present a series of talks that will inform delegates about practical guides for the assessment and management of this condition and will explore how […]
This webinar is part of the popular Genetics of webinar series and will discuss the challenge of equality and diversity in genomic research and clinical settings and strategies to address this. Genomic research has traditionally been focused on caucasian populations, which leads to inherent biases in genomic findings translated into clinical research. Underrepresentation of other populations in […]
The purpose of this event is to promote partnerships between patients and the medical profession to pave the way for a better, more inclusive healthcare system as we rebuild after the pandemic. By strengthening this relationship, we aim to ensure patients never feel isolated when they are at their most vulnerable. We will discuss real-life […]
Royal Society of Medicine
1 Wimpole Street, London, United Kingdom
Attend this meeting for a comprehensive update on the clinical management of genetic and inherited kidney diseases, including cystic and basement membrane disorders, podocytopathies and tubulopathies, in both children and adults. We will review the evolution of new genomic methodologies, including how they are informing our knowledge of kidney disease pathogenesis and outcomes, and their […]
Royal Society of Medicine
1 Wimpole Street, London, United Kingdom
We are delighted to announce our 10th annual symposium and, for the first time since 2020, it’s returning live and in-person! SAVE THE DATE... Join us on Wednesday 15th February 2023 at 1 Wimpole Street for M4RD's annual symposium 'The Unusual Suspects: rare disease in everyday medicine'. The Unusual Suspects has been a popular event […]
The aim of the meeting is to inform doctors that rare diseases are collectively common and relevant to every medical career. Very different rare diseases face similar challenges, including navigating healthcare which can be alleviated by a medical profession that understands what living with a rare disease means to a patient and their larger community. […]
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