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  • Information Day On Fibromuscular Dysplasia

    Information Day On Fibromuscular Dysplasia (FMD)


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    Fibromuscular Dysplasia (FMD) is evolving from a rare disease of renal arteries accounting for a minority of cases of secondary hypertension in young women, to a ‘systemic’ vascular disease which can also affect cervico-cephalic, coronary, and iliac arteries.

  • Rare Disease Day 2019 M4RD

    Rare Disease Day 2019

    28 February 2019 will be the twelfth international Rare Disease Day coordinated by EURORDIS.

  • BPSU Tea Party

    Royal College of Paediatrics and Child Health 5-11 Theobalds Road, London, United Kingdom

    The British Paediatric Surveillance Unit invites you to this year's event to enjoy afternoon tea and cakes, hear young people speak about their experience of living with rare disease and visit informational stands.

    Free

  • Rett UK Regional Professionals Day

    THE HUB Easton Street, High Wycombe, Buckinghamshire, United Kingdom

    Great opportunity to learn more about Rett syndrome and how to support people with the disorder

    Free

  • Drug Repurposing for Rare Diseases 2020 Conference

    America Square Conference Centre 17 America Square, London, United Kingdom

    Findacure's Drug Repurposing for Rare Diseases Conference is returning for its seventh consecutive year!

    £37.39 – £94.59

  • Online workshop: Understanding access and reimbursement

    ONLINE

    Getting wider access to drugs for as many patients a possible is a clear priority in the drug development process, especially for patient groups who are working to secure research into and treatments for their rare conditions. However, understanding how to secure access to newly developed treatments is an often-neglected challenge. The processes involved in […]

  • BBS UK Annual Conference 2022

    Hilton Hotel, Northampton 100 Watering Lane, Collingtree, United Kingdom

    This highly-anticipated event provides the unique opportunity to learn about the latest research, treatments, and day to day management of BBS, network with like-minded professionals and more importantly, learn from those living with Bardet-Biedl syndrome. The programme is still being finalised but will include: * Invaluable personal perspectives of living with BBS * An Update […]