Join this webinar to explore the practical things patient groups can do to make sure they are engaging with HCPs in the most beneficial way. Most rare diseases are not concentrated in one area or country and do not affect one singular body system, which makes finding healthcare professionals (HCPs) or specialists who understand them […]
The purpose of this event is to promote partnerships between patients and the medical profession to pave the way for a better, more inclusive healthcare system as we rebuild after the pandemic. By strengthening this relationship, we aim to ensure patients never feel isolated when they are at their most vulnerable. We will discuss real-life […]
FREE to attend, RAREfest22 is a public-facing, rare disease inspired festival featuring interactive talks, demos and exhibits, film and art showcasing ground-breaking science, visionary technology and pioneering organisations improving lives and bringing hope to those living with rare conditions. An award-winning festival that is as UNIQUE as the patients it champions. Featuring the brightest minds […]
The BPSU is currently planning to hold its yearly Symposium on rare diseases on 18th October 2022 and are in the process of compiling an agenda for the day, which will take place at the RCPCH council chambers on 13th October 2022. Join the BPSU, NHS clinicians, and patient groups for what is looking to […]
Join one of two upcoming webinars on either the 27 or 28 October for a first look at Rare Disease Day 2026! Learn more about the resources which have been created and everything that is available for download to use in your campaign. This webinar is for patient advocates, patient organisations, industry supporters and all […]
Medics for Rare Disease is proud to support the Swansea Rare Disease Study Day, hosted alongside Swansea University. This free event brings together clinical experts, patient speakers, and multiple charities and advocacy groups to share knowledge and experiences in the field of rare diseases. The day will feature: * Clinical and patient talks from a […]