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  • Hypermobility spectrum disorders(HSD) and Hypermobile Ehlers-Danlos syndrome (hED)

    LIVE STREAM

    Training for Health Professionals on hypermobility spectrum disorders(HSD) and Hypermobile Ehlers-Danlos syndrome (hEDS) The online course includes presentations and interactive case-based sessions for Health Professionals and those who wish to gain further knowledge and advance their clinical practice in assessing and management children and adults with Hypermobility Spectrum Disorders, Hypermobile Ehlers Danlos Syndromes and associated conditions.

    £25

  • Understanding ME/CFS, symptom crossover with hEDS/HSD and implications for Long Covid

    LIVE STREAM

    Dr Sue Pemberton PhD is a qualified occupational therapist who was involved in setting up the Leeds based Chronic Fatigue Syndrome Service in 1990, one of the first NHS clinics specifically for the condition. She wrote the original therapy programme and worked clinically with the service for over 22 years, in addition to holding a […]

    £25

  • King’s Health Partners Rare Disease Grand Round: Hepatobiliary disease

    ONLINE

    Join the upcoming Rare Disease Grand Round, hosted by the King’s Health Partners Rare Disease Network—bringing together researchers and clinicians across the region to foster collaboration, share insights, and advance rare disease research. This session will focus on hepatobiliary disease, featuring expert talks on cutting-edge research: Mind over MASLD: Unravelling brain dysfunction in steatotic liver […]

  • Rarely Taught: Reflections on Rare Disease Training Globally

    ONLINE

    Connect with healthcare professionals and students from around the world for a dynamic discussion on rare disease medical training across global contexts. As part of this interactive session, we’ll also deliver a FLASH Rare Disease 101 training showcasing our updated e-learning course - giving you the opportunity to #LearnYourStripes ahead of Rare Disease Day 2026. […]

  • Rare Disease, NF1 and Primary Care: Research Workshop

    Engine Rooms Birchwood Park, Warrington, Cheshire

    This interactive research development workshop brings together clinicians, academics, researchers and industry partners to explore how primary care can better support people living with rare diseases. Using neurofibromatosis type 1 (NF1) as an exemplar condition, the session will examine early recognition, diagnostic pathways, care coordination, and opportunities for research using routinely collected data and digital health tools. Participants will collaborate to identify evidence gaps and develop a patient-centred research agenda grounded in everyday primary-care practice.

  • Swansea Rare Disease Study Day

    Morriston Hospital Education Centre Heol Maes Eglwys Treforys SA6 6NL

    Medics for Rare Disease is proud to support the Swansea Rare Disease Study Day, hosted alongside Swansea University. This free event brings together clinical experts, patient speakers, and multiple charities and advocacy groups to share knowledge and experiences in the field of rare diseases. The day will feature: * Clinical and patient talks from a […]