Are you affected by a rare condition and from a diverse and marginalised community?

If so, join Breaking Down Barriers for their virtual event, to help them understand how health inequalities affect you. People diagnosed with a rare condition, family members, carers, and charity representatives are all welcome to come along and offer support. BDB want the conversation to be as open, accessible and as inclusive as possible.

What will be discussed?

Health inequalities are unfair and avoidable differences in health between different groups of people. Breaking Down Barriers and the Department of Health and Social Care are working in partnership to understand more about the health inequalities experienced by people from diverse and marginalised communities who are also affected by a rare condition. We want to listen and learn about people’s lived experiences and identify ways that we can address health inequalities throughout new policies for people with rare conditions that are being developed now.

How to get involved

If you would like to join us, please email Kerry.leeson@alstrom.org.uk or call 077161 35940.

BDB will then send you joining instructions. BDB can also arrange a 1-1 chat before the event if that is helpful. Please let them know if there is anything they can do to support you to take part.