Pompe Preceptorship, hosted by Mark Holland from the Metabolic Unit, Manchester

Topics to be included:

• Biochemistry & Genetics of Pompe Disease
• Infantile & Adult Pompe Disease
• Metabolic Myopathy
• Benefits of exercise in Pompe Disease
• Nutrition in Pompe Disease
• Respiratory function
• Palliative care
• Research in Pompe
• Future of Gene Therapy
• AGSD – Patient Society
• Patient’s Experience of living with the condition

This event is open to all medical staff but places are limited.  Funding for this event is available.

For further information and to request a registration form please contact:
Karen Wynne, Mark Holland Metabolic Unit, Email: karen.wynne@srft.nhs.uk

Telephone: 0161 206 4365