Medics for Rare Disease has a vision of healthcare equity for everyone. We have been working with the Department of Health and Social Care since 2018 in order to achieve our mission.

We are hosting this online workshop in order to develop recommendations for the DoHSC about ‘healthcare professional awareness of rare disease’.

We will be asking: What is healthcare professional awareness? How do we implement it throughout the NHS? How do we measure it? If you have practical ideas and suggestions that could inform these recommendations, WE WANT YOU to join us on the day.

Who do we want to attend:
* People who have practical ideas
* People who have experience of driving system change
* People who have experience developing services in the NHS
* People with experience designing and implementing e.g. Dementia Friendly Hospitals
* Healthcare professionals, people who work in the NHS and advocates alike!

This project (‘IAG2’) is being run by Medics for Rare Disease and Emotive with support from collaborators on the UK Rare Diseases Framework Forum and has been approved by The Department of Health and Social Care.

Keep in mind:
* We are not responsible for implementing the recommendations
* This will not be a forum for exploring single individual’s experiences
* This will not be a forum for raising concerns or complaints about single cases of care

About IAG2
Listen to this podcast episode to understand the background of the IAG2 and more details about the plan for the day.