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News

News, updates and insights from the front line of rare disease education

We are so grateful for the support of our followers and want you to know all about our initiatives, accomplishments and upcoming plans!

Here you can...

  • Find out all the information you need for Rare Disease Day plans
  • The latest achievements of the charity and our Ambassadors
  • Read stories and opinion pieces from our network
  • Discover new ways to make your care ‘Rare Aware’

For your convenience, all press releases are also available to download from our Press and Media section, allowing you to easily access and share this information with others. 

Make sure you sign up to our Newsletter so you know when there is Medics for Rare Disease news! If you would like to submit a news story please fill in our contact sheet.