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Your Rare Event Toolkit: Plan, Run, Inspire

Thinking of running a Rare Disease event in 2026? Whether it’s a seminar, study day, or conference — this session is for you.
Join Medics for Rare Diseases and our panel of Ambassadors who successfully organised Rare Disease events last year. Learn the ropes, get inspired, and discover how to make your event a success!
What to expect
💡 Resources and guidance – Find out what support and materials are available to help you plan and deliver your event.
🧭 Top tips from experience – Hear from Ambassadors who’ve been there and done it, and learn what worked for them.
💬 Q&A session – Bring your questions and ideas to our Ambassador panel.
Who should attend?
Medics for Rare Diseases Ambassadors: medical students, trainees, and healthcare professionals interested in running a Rare Event or patient advocates looking to raise awareness of rare conditions in their community or institution.
Why attend
You’ll leave with practical advice, ready-to-use resources, and the confidence to host your own Rare Event in 2026 — helping your peers and colleagues to become Rare Aware 💜